Minority Health Archive

Are Minority Children Under- or Overrepresented in Pediatric Research?

Walsh, Catherine and Ross, Lainie (2003) Are Minority Children Under- or Overrepresented in Pediatric Research? Pediatrics, 112 (4). pp. 890-895.

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Abstract

Objectives. There is extensive documentation that minority adults are underrepresented in medical research, but there are scant data regarding minority children and their parents. Methods. All full-length articles published in the paper edition of 3 general pediatric journals between July 1999 and June 2000 were collected and reviewed. Articles were excluded when they did not include at least 1 US researcher, all subjects at US institutions, parents or children as subjects, some prospective data collection, or between 8 and 10 000 subjects. We recorded the number and race/ethnicity (R/E) of all subjects, the type of research, and the type of data collected. Corresponding authors were surveyed to clarify R/E data. Results. A total of 192 studies qualified. R/E data were reported in 114 (59%) studies, and survey data provided additional or new information in 25 studies resulting in R/E data in 128 (67%) articles accounting for 75% of the subjects. R/E was described by >10 different labels. There was an overrepresentation of black subjects and an underrepresentation of white and Hispanic subjects compared with the census data. When compared with research participation of child subjects, generally, black children were overrepresented and Hispanic children were underrepresented in clinical trials, and both were underrepresented in therapeutic research. Black and Hispanic children were overrepresented in potentially stigmatizing research. Conclusions. Overall, we found an overrepresentation of black subjects and an underrepresentation of white and Hispanic subjects with significant variations depending on the type of research. Pediatrics 2003;112: 890–895; race, ethnicity, research subjects, research.


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Item Type: Article
Additional Information: This article is available at the publisher’s Web site. Access to the full text is subject to the publisher’s access restrictions.
Uncontrolled Keywords: race, ethnicity, research subjects, research
Subjects: Health > Disparities
Health > Prenatal & Pediatric Health
Research
Research > studies
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Depositing User: Users 141 not found.
Date Deposited: 31 Mar 2011
Last Modified: 28 Jun 2011 11:07
Link to this item (URI): http://health-equity.lib.umd.edu/id/eprint/604

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