Minority Health Archive

“What Are They Going to Do With the Information?” Latino/Latina and African American Perspectives on the Human Genome Project

Schulz, Amy and Caldwell, Cleopatra and Foster, Sarah (2003) “What Are They Going to Do With the Information?” Latino/Latina and African American Perspectives on the Human Genome Project. Health Education and Behavior, 30 (2). pp. 151-169.

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Abstract

Newdevelopments in genetic science raise questions regarding their application and implications. Dialogue about these questions has not often included the perspectives of the general population and, in particular, the voices of labeled racial or ethnic groups. In this article, the authors present results from an analysis of data from focus group discussions that engaged African Americans and Latinos/Latinas in a discussion of genetic research and technology. In particular, the authors focus on questions of inequality that arose in those focus groups and their implications for public health professionals interested in addressing pervasive racial disparities in health. In addition, they present strategies for achieving a more equitable distribution of risks and benefits from genetic research and technology suggested by participants in these focus groups.


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Item Type: Article
Additional Information: This article is available at the publisher’s Web site. Access to the full text is subject to the publisher’s access restrictions.
Uncontrolled Keywords: racial disparities; Hispanic perspectives on genetics; African American perspectives on genetics; perspectives on genetics
Subjects: Health > Health Equity
Health > Disparities
Research
Research > Genetics and Race
Related URLs:
Depositing User: Kismet Loftin-Bell
Date Deposited: 28 Mar 2006
Last Modified: 30 Jun 2011 11:33
Link to this item (URI): http://health-equity.lib.umd.edu/id/eprint/426

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