Minority Health Archive

The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples

Mello, Michelle M. and Wolf, Leslie E. (2010) The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples. The New England Journal of Medicine, 363. pp. 204-207.

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Abstract

On April 20, 2010, Arizona State University (ASU) agreed to pay $700,000 to 41 members of the Havasupai Indian tribe to settle legal claims that university researchers improperly used tribe members’ blood samples in genetic research. The settlement closes a difficult chapter for both parties but leaves open a bedeviling question for genetic research: What constitutes adequate informed consent for biospecimens collected for research to be stored and used in future, possibly unrelated studies? The case illuminates the clashing values that have driven debate in this area and the importance of understanding the study population’s perspectives.


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Item Type: Article
Additional Information: This article is available at the publisher’s Web site. Access to the full text is subject to the publisher’s access restrictions.
Uncontrolled Keywords: Havasupai Indian tribe, genetic research, informed consent, biospecimens,
Subjects: Health > Health Equity > Bioethics
Research
Research > Genetics and Race
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Depositing User: Users 141 not found.
Date Deposited: 14 Apr 2011 16:24
Last Modified: 30 Jun 2011 16:54
Link to this item (URI): http://health-equity.lib.umd.edu/id/eprint/2395

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