Minority Health Archive

The Role of Community Advisory Boards: Involving Communities in the Informed Consent Process

Strauss, Ronald P. and Sengupta, Sohini and Quinn, Sandra Crouse and Goeppinger, Jean and Spaulding, Cora and Kegeles, Susan M. and Millett, Greg (2001) The Role of Community Advisory Boards: Involving Communities in the Informed Consent Process. American Journal of Public Health, 91 (12). pp. 1938-1943. ISSN 0090-0036

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Abstract

Ethical research involving human subjects mandates that individual informed consent be obtained from research participants or from surrogates when participants are not able to consent for themselves.The existing requirements for informed consent assume that all study participants have personal autonomy; fully comprehend the purpose, risks, and benefits of the research; and volunteer for projects that disclose all relevant information. Yet contemporary examples of lapses in the individual informed consent process have been reported. The authors propose the use of community advisory boards, which can facilitate research by providing advice about the informed consent process and the design and implementation of research protocols. These activities could help reduce the number of individual informed consent lapses,benefiting study participants and the scientific integrity of the research in question.


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Item Type: Article
Additional Information: Access to full text is subject to the publisher's access restrictions.
Uncontrolled Keywords: Ethical research; human subjects; autonomy; research protocols
Subjects: Health > Health Equity > Bioethics
Health
Practice
Research
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Depositing User: Users 141 not found.
Date Deposited: 03 Oct 2008
Last Modified: 16 Jun 2011 11:52
Link to this item (URI): http://health-equity.lib.umd.edu/id/eprint/1042

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